TACKLE is a the national Federation of Prostate Cancer Support Groups, (reg charity No. 1163152) PCaSO is a member of TACKLE
CHAPS is a registered charity which aims to be an advocate for all Men’s Health in general and for Prostate Cancer in particular, based in London and East Anglia.
The two charities have come together with The Metrpolitan Grand Lodge to run this programme.
The UK has no national Prostate Cancer (PCa) Screening Programme even though over 12,000 men die from PCa every year and the UK has one of the worst PCa mortality rates in Europe. This Project is based on evidence that regular testing in screening programmes running up to 20 years in Europe and North America have halved the PCa death rate.
PCaSO has joined this Project and we now need your personal consent to maintain testing within the parameters of the Proect with the additional aim of persuading the National Screening Committee to implement UK-wide PCa screening.
Objectives & Criteria
1. To halve the risk of death from PCa, your initial PSA is coupled to risk factors such as age, ethnicity and family history of PCa or breast and ovarian cancer on the female side to determine frequency of future PSA testing within the Project. With your PSA result we will also supply a recommendation on future PSA tests with appointments scheduled initially as follows:
Every year for men at high risk
Every two years for men at intermediate risk
Every three years for men at low risk
2. PCa screening should continue until your mid-70s. We will issue reminders and further appointments for men remaining in this programme, but should your host organisation (PCaSO) be unable to provide your next test on schedule, please contact us at CHAPS or at www.mypsatests.org.uk to access an alternative.
3. The testing frequency may change as time goes by and more individual PSA tests accumulate.
4. For men already in their 70s or older who have no risk factors and have a low, normal PSA, studies have shown that the risk of death from PCa becomes remote. Such men can be reassured and discharged, no further PSA tests being necessary.
Data & GDPR
All information supplied will remain secure and confidential in accordance with the Data Protection Act 2018. Your details will only be used in order to monitor any changes (velocity) in your PSA score and for research purposes with other bona fide, data protected, approved Project collaborators. It will not be passed on to any other parties or used for marketing purposes.
Your consent confirms you will abide by the Project recommendations in your results communication:
• If your result is normal, please return to your local host organisation or Charity for your next PSA test at the recommended time for which you will be issued reminders. Should your host organisation (PCaSO) be unable to provide your next test on schedule, please contact us at CHAPS or at www.mypsatests.org.uk to access an alternative.
Please DO NOT return before the recommended time as we will not repeat your PSA test unless there are mitigating clinical circumstances.
• If your result is abnormal, follow this up with your GP and ensure that your GP understands the significance of the result and is happy to follow the Charity’s recommendations. If not, please contact us immediately.
• NB. The PSA test is only a guide. It is not an absolute indicator of either the presence or absence of PCa.
• Please note, results are not supplied to your GP, only to you.
Please confirm you understand and agree to your personal commitment and our data requirements for this Project by completing the online questionnaire and ticking the box.
For any further information, advice or participation, contact us at 01206 321251 the or firstname.lastname@example.org